Developing a Legal Framework for Population-Based Cancer Registries: A Toolkit

IARC Technical Publication No. 49 (download for free here)

This toolkit, developed by the McCabe Centre for Law and Cancer (Australia), with the support of the International Agency for Research on Cancer (IARC) and the African Cancer Registry Network (AFCRN), is intended to serve as a resource to support countries to establish a legal basis for the mandatory reporting of cancer diagnoses to a population-based cancer registry. The toolkit comprises a report and several online tools to enable a structured approach to drafting a law. It ensures compliance with international best practice while allowing flexibility for local adaptation.

This activity was funding by the Vital Strategies, part of the Bloomberg Data for Health Initiatives. 

 

Updated 22th January 2026