One of the goals of the the African Cancer Registry Network (AFCRN) is improve knowledge of the burden of cancer on the African continent. Its members have collected valuable data on new cases of cancer diagnosed in their area of coverage. In order to facilitate research studies based on these data, the AFCRN members have established a central DATABASE, comprising anonymous records of cases registered, as well as information on the size and composition of the population at risk.  The variables available for each case are described below. The database is being hosted by the  International Agency for Research on Cancer ( IARC), under the terms of an agreement by which the confidentiality of data will be maintained.

 

Rules for access:

Requests for access to the database must be approved by the AFCRN Research Committee. For relevant description of the procedure please click HERE.

The Cancer Case File contains 14 variables on each case:

  1. Patient identification number
  2. Tumour sequence number
  3. Ethic group   
  4. Sex
  5. Date of birth
  6. Age in years
  7. Date of incidence
  8. Place of Residence
  9. ICD-O-3 Topography
  10. ICD-O-3 Morphology
  11. ICD-O-3 Behaviour
  12. Basis of diagnosis
  13. Laterality 
  14. Stage
  15. Vital status at last contact
  16. Date of last contact
  17. Date of death

 

The Population File should correspond to the Cancer Cases File with respect to:

  1. • Sub-population (for example ethnic group, if applicable)
  2. • Registration area
  3. • Time period
  4. • Sex

The file contains mid-year (as at 1st July) estimates (or mid-period estimates) for each sub-category. If  possible, the population file comprises the population estimate for every combination of:

  1. • Calendar year
  2. • Sex
  3. • Age (standard 5-year age-groups,   IF possible, separating infants (age = 0) from children aged 1-4)

 

Data of the AFCRN DATABASE are from all member Registries.

 

Updated on 10th December 2024