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Thu,27Apr2017

Zimbabwe, Harare

Background

The Zimbabwe National Cancer Registry (ZNCR) was established in 1985 as a result of a collaborative research agreement between the Ministry of Health and Child Care (MHCC) and the International Agency for Research on Cancer (IARC) of the World Health Organisation (WHO). This followed the acknowledgement and realisation by the MHCC that cancer had become an important cause of morbidity and mortality, and therefore a serious public health problem in Zimbabwe.

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AFCRN Membership Criteria

  • Membership is by invitation following a consultant visit of evaluation
  • Two existing members may propose new members for evaluation
  • Registries in the countries of Sub-Saharan Africa (the WHO-AFRO region, minus Algeria) are eligible for membership
  • The registry must be POPULATION BASED, and achieving at least 50% coverage of the target population*
  • Members must accept participation in joint AFCRN projects:

as approved at the AFCRN Annual Meeting

and approved by the AFCRN Research Committee

  • Members must adhere to the policy (as agreed at the AFCRN Annual Meeting ) on International Collaborative Research
  • Members must maintain an up to date Web Page on the Network website
  • Member registries should contribute data to the African Cancer Registry Database
  • Representatives from member registries should not be absent at two consecutive annual meetings

* Membership will lapse for registries that fail to achieve ≥ 70% coverage within 3 years of joining AFCRN.

 

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CRITÈRES D’ADHESION A l’AFCRN

 

  • L’adhésion se fait sur invitation suite à une visite d'évaluation par un consultant
  • Deux membres existants peuvent proposer de nouveaux membres pour l’évaluation
  • Les registres des pays d'Afrique sub-saharienne (la région OMS-AFRO, moins l’Algérie) sont admissibles à l'adhésion
  • Le registre doit être basé sur la population, et doit atteindre au moins 50% de couverture de la population cible *
  • Les membres doivent accepter de participer à des projets communs AFCRN:

tels qu'approuvés lors de l'assemblée annuelle de l’AFCRN

et approuvés par le Comité de recherche de l’AFCRN

  • Les membres doivent adhérer à la politique du réseau concernant les projets internationaux de recherche concertée (comme convenu lors de la réunion annuelle AFCRN).
  • Les membres doivent maintenir à jour une page web sur le site Internet du Réseau
  • Registres membres devraient fournir leurs données à la base de données du Reseau AFRCN
  • Les représentants des registres membres ne devraient pas être absent à deux réunions annuelles consecutives

* L'adhésion est annulée pour les registres qui n'atteignent pas une couverture ≥ 70% dans les 3 ans suivant l'adhésion à l’AFCRN.

NSCR Site Visits

Periodic site visits are carried out by NSCR monitoring team to observe the activities of all cancer registry staff as regards data abstraction and recording, and data quality checks are carried out on their data for completeness, validity, comparability and timeliness.

Ekiti Cancer Registry: Visited on 29th of March 2011 by Dr. Emmanuel Oga of NSCR.

Director: Dr. Erinomo Olagoke

Main findings

1. Four staff members; one registrar, 3 data clerks.
2. Determined staff, trained on cancer registration at the Institute of Human Virology Nigeria.
3. An over reliance on pathology reports resulting in under reporting of cancers. Microscopically verified cases were almost 100%.
4. 157 notification centres across the coverage area making it difficult to cover all these sources.
5. A work plan was not available.

The cancer registry has since begun collecting clinically diagnosed cancers.

Picture: Mr. Adebayo Ojo, the cancer registrar, at work.

 

 

Keffi Cancer Registry: Visited on the 6th of November 2010 by Dr. Emmanuel Oga of the NSCR.

Main Findings

  1. Single staff, the cancer registry.
  2. No office space. Only a single desk.
  3. Data entry into canreg4 had not begun.
  4. No provision for transportation to reach regional data sources.

The issues in the registry centre on the lack of institutional support. The cancer registrar requires more training, office space and more staff is needed; there needs to be financial provision for the registry’s activity.

Picture: Ms. Justina Awoje, cancer registrar, Keffi, Nassarawa State, Nigeria.

 

 

Kano registry: Visited on the 18th and 19th of october, 2010 by Dr. Emmanuel Oga of NSCR.

Director: Dr. Ochicha Ochicha

Main findings

  1. Single staff
  2. Hospital based registry
  3. No dedicated office
  4. Well supported by the hospital management.
  5. Canreg4 software not being used, abstracted cases were entered into excel.
  6. Registry staff cited the lack of National policy and the absence of incentive for cancer registration as major hindrances.

The registry has been putting things in place to become fully population based. More will be needed from the hospital administration to make this work. The Kano registry has all it takes to function well considering the support it receives from the hospital management. The availability of an eager cancer registrar and a structured administrative hierarchy as evidenced by the amount of cancer related data already collected by the registry. The problems observed include the lack of progress with the canreg software and the absence of data from regional hospitals.

 

Nnewi registry visit: Visited on the 19th of May, 2011; by Dr. Emmanuel Oga

Director: Professor A.M.E Nwofor

Main Findings

1. Adequate office space, well furnished.
2. There are 2 members of staff working in the registry.
3. The registry still grapples with logistics and budgetary constrains
4. Coverage is not yet complete
5. Data quality issues existed at the time, these have since been rectified.

The Nnewi registry appears well positioned to excel due to the fact that it is well staffed and has done well in establishing an organisational structure that should stand the test of time. There is an understanding of the basic requirements of a cancer registry.

Picture: Dr. Ukah (The supervisor), Gloria Oyeoka (cancer registrar) and Dr. Oga (NSCR)

 

Gwagwalada registry visit: Visited on the 13th of September 2010 by Dr. Emmanuel Oga of the NSCR.

Director: Dr Ohunene Ize Otu

Main Findings

  1. Dedicated office
  2. One cancer registrar
  3. Hospital based registry

The cancer registrar at Gwagwalada is dedicated enough but he's been burdened with the problems of logistics and inadequate personnel, it also appears that the cancer registry is isolated from the hospital management as there hasn't been any significant help with the stated problems.

 

Enugu Registry Visit: the visit was done on the 20th of may 2011.

Director: Prof. Emmanuel Ezeome.

Main findings

1. 5 well trained, dedicated members of staff
2. Reasonable support from hospital administration
3. Good quality data
4. Problems with reaching data sources within the coverage area
5. Lack of cooperation from data sources.

The Enugu registry is perhaps the most endowed in quality of manpower possessed, they seem to have a well established organisational structure as well. The lack of full population based coverage at the moment may be a setback for this registry but a deeper look reveals an establishment that is punching well under its weight. With a little repositioning, this registry could be a major success story.

Picture: Ann Okoroafor (cancer registrar) and Mrs. Udeh (cancer registrar)

 

Jos registry visit: Visited on the 23rd of November 2010.

Director: Dr. Silas Gbenga

Main Findings

  1. Under staffing
  2. Lack of a dedicated office room for the registry
  3. Laboratory request forms lacked provision for some information needed by the registry.
  4. The medical records didn’t have case files arranged according to diseases.

In overcoming these problems they have successfully gotten the hospital administration to restructure the laboratory request forms. The resident doctors of the department have been actively involved in data input as a way of conquering the problem of under staffing.

The hospital administration had since promised better support to the registry. This is yet to come.

The Advanced Training Course on Cancer Registration Methods was preceded by Cancer Registries Site visit:

Dr. Max Parkin (AFCRN), Prof. Ekanem, Dr. Elima Jedy-Agba, Mr. Joel Bassey and other members of the Calabar registry.

 

 

 

 

 

From left to right: Mr Eric Chokunonga (AFCRN), Ms. Udodirim Eyinnaya (cancer registrar), Ms. Udeh (senior cancer registrar), Dr. Emmanuel Oga (NSCR), Ms. Ann Okoroafor (cancer registry), and the data entry clerk at the Enugu registry

From left to right: Dr. Emmanuel Oga (NSCR), Ms. Afomma Okeke, Ms Gloria Oyeoka (cancer registrar), Mr. Eric Chokunonga (AFCRN), Dr. Cornelius Ukah (supervisor, cancer registry) at the Nnewi registry.

 

 

 

Left to Right: Dr. Iman Martin (AFCRN), Dr Popoola ( Cancer Registry Director), Cancer unit Administrator, Mr. Reuben Ogunleke (Cancer Registrar) and Dr. Michael Odutola (NSCR) inside the Lions Center, which houses the LASUTH registry in Lagos.

 

 

 

From Left to Right: Mr. Lawal (Secretary to CMAC), Tunde Ayilara (Cancer Registrar), Dr Adeniji K. A (consultant pathologist), Prof Afolayan (Cancer Registry Director), Dr. Iman Martin (AFCRN), Dr Alabi B. S (CMAC UITH),Mr Tosin Oluokun (Statistician UITH) and Dr. Michael Odutola (NSCR) at the Ilorin Registry.

 

 

 

Dr. Obiorah Chris (Director), Mrs Barasin Solomon (registrar), Mr Dee Emmanuel (registrar), Ms. Gift Oviemuno (registrar) and Dr. Emmanuel Oga (NSCR) at the Port Hacourt Registry.

NSCR Trainings

Cancer Registration, Epidemiology and Use of CanReg4 held from April 7th to 9th 2009, with 70 participants from 30 Federal Health Institutions.

Resource persons are Prof Clement Adebamowo , Drs. Abdulkareem, , E. E. U. Akang, Yemisi Akinwande,  I. Ekanem, E. R. Ezeome, O. Ogunbiyi, P. Osinubi, T. Yawe and A. Zakari from Nigeria
Dr. Maria Paula Curado and Mr. Morten Ervik from IARC

 

Cancer Registration, Epidemiology and Use of CanReg4 held in  Dec 2009, with 35 participants from 30 Federal Health Institutions

Resource persons are Prof Clement Adebamowo, Dr  E. Jedy-Agba and Mr. James Abdulazeez from Nigeria, Dr. Maria Paula Curado and Mr. Morten Ervik from IARC by broad band video linkage

 

Quality control in cancer registries held in Feb. 2011, with 30 participants from 20 Federal Health Institutions.

Resource persons are Prof Clement Adebamowo, Dr E. Jedy-Agba and Mr. James from Nigeria
Dr. Maria Paula Curado and Mr. Morten Ervik from iPRI

 

The AFCRN in collaboration with NSCR held an Advanced Training Course on Cancer Registration Methods, which took place between the 19th and 23rd of November, 2012. There were 22 participants in total (18 from Nigerian cancer registries and 4 others from other African countries including; Gabon, Kenya and Seychelles.

Resource persons are Dr Maxwell Parkin (CEO AFCRN and President INCTR), Dr. Iman    Martin (Epidemiologist, Chicago USA), Mr Eric Chokonunga (Director Harare Zimbabwe Cancer Registry), Ms Catherine Okello (Epidemiologist, London UK), Prof. Femi Ogunbiyi, Dr Rasaaq Oyesegun, Dr Elima Jedy-Agba and Dr Emmanuel Oga.

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